I just received a very disturbing comment from a user stating that Michael E. Robinson director of the The Office of Advocacy for Autistic Children just told an autistic person that his opinion is unwelcome in the proposal of an Autism Health Care bill he is proposing on the website change.orgAccording to the comment left by Samuel, “[Michael Robinson] doesn’t want our input” on the Autism Reform Act of 2009 and further accused Samuel of being a ‘pirate’ for posting a publicly editable copy of the bill he is proposing. So I decided to look through the conversation on the change.org website.
Samuel’s comments appear to be by far correct. When another person posted they cannot support a bill that supports chelation as an autism therapy the reply was:
You are entitled to your opinion, Thank you.
Michael E. Robinson, Sr.
Mr Robinson also seems to think that any opinion offered on the bill from the perspective of an autistic individual is a negative attack. He further goes to say:
I have received email regarding these and to assure all they have been reported and their ‘wants’ are being disregarded.
When Samuel created a google document version of the Autism Reform Act to encourage more public editing of the document he told:
Not only did you ‘Pirate’ the initial legislative request word for word, except for the words you didn’t like, you moved it from this forum’s comment board to a google site and then solicited the parents from here to go to your site – good luck with your proposal. In the future I recommend that if you want to ‘take without asking’ you don’t leave a trail of comments behind you as you did in this case.
And then he was also told…
please cease and desist in this activity – you have a home for it on Google.. go there and be there, your comments are not welcome here and neither is your input.
All of this can be found on the Autism Reform Act at Change.org. I encourage everyone who disagrees with this bill to state your opinions at change.org, I also encourage you to blog about this as it needs to be known immediately.
And I need to address Mr. Robinson,
You need to realise that when creating a bill that it is not your property. The United States is a Democratic society in which people can freely speak about and debate possible legislation. The Autism Reform Act of 2009 is not your property – it is the property of the people of the United States. Your accusations of accusing someone of being a pirate for encouraging open review of a possible bill is very un-American.
Furthermore the bill that was being reviewed deals with Autism Reform. The person who you told to ‘decist’ and told them they were ‘not welcome here’ really shows how much you care about Autism. I don’t know anything about your Office of Autism Advocacy – but I can tell you that you are no advocate, you are just a low down punk. You have just shut down and told a person with Autism that there comments are no longer welcome, accused him of pirating a bill, and basically proved that you are not an advocate.
I request you resign from your post as the Director of your office immediately. A punk like you is not someone I want advocating for me.
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{ 23 comments… read them below or add one }
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Please see You Tube video titled: “Severely Autistic Boy Beaten by Big Government”
It’s an eye opener. Mom takes you inside the crazy system serving autistic children/teen/adults/ and exposes some of the apathetic people we have working in our agencies. Amazing. Shocking. Sad. We need big change with less government right now. Screw finding cures! What’s needed is practical right now helps and supports for families who are trying to protect their autistic children from a very mixed up neurotypical run society.
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Thanks to those that posted my article here.
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please feel free to comment at the site. He’s posting as supposed people he’s helped in order to contradict the story.
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Michael Robinson was supposed to have done some ‘work’ on behalf of my child. He seemed to never have anything together when I called him. I got tired of it and ended up advocating for my child on my own. I filed a Citizen’s Complaint on the school and was granted what I wanted. After that I spoke with Michael and he claimed he had a case going in a town close to where I lived. He did not even know what a Citizen’s Complaint was. After I told him , he said he was going to file the same thing for the case he was working on. I had a feeling he was not what he said. He always told me he was epileptic and he was adjusting meds. I was also on his yahoo group and was really lambasted because I spoke my oppinion taht he did not seem to help anyone he said he would. He kicked me out of the group and shortly after he was doing the same to group monitors. I was told to CEASE and DESIST in my ACTIVITY.
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FYI…he’s a scam artist!
http://www.examiner.com/x-10560-Special-Needs-Kids-Examiner~y2010m3d4-Michael-E-Robinson-Sr-proves-the-case-it-is-important-to-verify-credentials
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Lol, is this going around still?
Funny that he’s telling a bunch of people with eidetic memories that he both apologized and ‘never did that’. Which is it? My irony meter, it exploded.
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There is a great video on you tube called “severe autism when there is no answer” The video is made by a man with Aspergers (a fellow aspie) who also has an autistic son. Very enlightening. Youll be surprised.
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